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Dead machines amidst cancer agony
By Kumudini Hettiarachchi
Intense suffering and despair.
That's what you see, even as a casual observer at the Maharagama Cancer Hospital.

It is difficult to grade suffering and pain, but the most heart-rending kind tinged with despair can be seen in the faces of the hundreds of men, women and children who seek solace and treatment here. They come not only from around Colombo but also from far flung areas of the country.

The staff seem concerned and helpful, but on a visit to the hospital last week, the state of some of the important equipment left much to be desired.

Take the plight of 51-year-old K. Jayasena who has come all the way from Ratnapura. Running a boutique in a small town close to Ratnapura he didn't know anything was wrong with his lungs until he entered the hospital there for a major urine infection. A gamut of tests and X-rays revealed a growth in his lungs and he was referred to the Cancer Hospital.

"Current allanda awa" (Came to hold current), he tells us, lifting his shirt to indicate a chest area on the right with a large square demarcated by small pieces of white plaster and purple ink. He, of course, is referring to radiotherapy. This is his tenth day of therapy and he has 10 more days to go.

For the duration of the radiotherapy he roughs it out with a relative who is in Colombo, while his wife and children struggle with their routine back home in Ratnapura.

What Jayasena is ignorant of is that he has been manually marked for radiotherapy and the accuracy is questionable. For, the simulator (an X-ray like machine) which should be doing the job and would be more accurate in marking the area where the radiotherapy should destroy the malignant or cancerous cells, has not been working since mid-April.

The one and only simulator in the whole of Sri Lanka has been out of order for three months, maybe a short time for many, but a very, very long time for men, women and children who are battling life and death.

The simulator marks the exact spot where radiotherapy should be directed. When the same is done manually "the accuracy is less and there is a margin of error", conceded hospital authorities.

"The simulator helps in accurate diagnosis and planning of therapy," the authorities state, adding however that in Kandy and Galle Hospitals manual marking is being done because there are no other simulators in the country.

Usually, the simulator marks about 30 patients every-day.

"It went out of order in mid-April and we've attended to the procedure to get it repaired. The funds too have been allocated. We are awaiting the company's action and reminding them often, to repair it," say the hospital authorities. (See box for company explanation)

His whole neck black after radiotherapy, retired Postmaster Justin Silva, 72, struggles to talk to us in a hoarse whisper. He has undergone 22 days of therapy and has another eight more to go. "I couldn't talk and they found the tumour in the throat," he says, while his wife hands him a glass of water. He can take only liquids, because his mouth is also sore.

No circuit boards for simulator
"The simulator is an old model brought in 1988-89 and the five circuit boards needed for its repair are not being manufactured now. As soon as we were informed by the Cancer Hospital authorities that the machine was not working, I got in touch with Nucletron Holland, through its Indian subsidiary. Nucletron Holland has promised to get them manufactured specially for this simulator," says Service Engineer Upul Amarapathy of General Sales Company Ltd, the agents for the simulator.

Mr. Amarapathy's assurance is that the company will repair the simulator next week or in a fortnight the latest.

The repair would cost around Rs. 800,000 while the simulator may have cost about Rs. 50 million at the time of purchase.

When we sent quotations for the repair the Euro was Rs. 86, now it is about Rs. 96 and the company is losing out. But we will still do the repair, adds Mr. Amarapathy.

The simulator went out of order, when lightning struck it in mid-April because someone had removed the lightning conductor of the hospital, according to him.

I dare not let my thoughts wander whether manual marking is leading to the radiotherapy covering other healthy areas too.

This is not the only problem at the Cancer Hospital. The Sunday Times learns that even the CT Scanner which is used for detection of cancers and diagnostic planning is also malfunctioning.

And some patients have to wait two, three years for certain essential drugs, such as radioactive iodine, for the treatment of their tumours.

A 59-year-old woman who was detected with thyroid cancer underwent the operation to remove her thyroid as far back as early 1999. Later she was put on thyroxin, and also told by the doctors that she would need to get radioactive iodine. Her card was marked in 1999 for such treatment.

It is only now, July 2002, that she is finally due to get the radioactive iodine to destroy any secondaries that may have been left behind, causing the threat of cancer once again.

She is worried, because after the radioactive iodine is administered she would have to stay away from her little grand- daughter for a while. "I looked after her until now, but the doctors tell me that I will have to be away from her because radioactive stuff is not good for her. My daughter has moved out of our house with the grand-daughter. It's for the best. Even if we die, the little ones must live," she says with a tremor in her voice.

No, they must live too, as long as the doctors can treat them and as long as there is breath in their bodies. They must not give up hope and we, as a society, must not allow it to happen.

The government must focus on the needs of the state health sector now and step in quickly to assess and provide the facilities and the equipment, the humble folk of this country depend on. It is a basic right of the people who seek succour from state hospitals.


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